Thursday, October 31, 2013

Take Action Thursday: Engaging in Research Studies

Engaging in Breast Cancer Research – Hayley’s Story

In 2010, the University of Kansas Breast Cancer Prevention Center received a $4.5 million Promise Grant from Susan G. Komen. This purpose of the grant is to investigate whether an estrogen found in flax seed – a commonly used supplement – can reduce the risk for breast cancer.

Hayley Woods decide to become a part of something bigger than herself! After hearing about the research study from her local Komen Affiliate, Hayley called the Prevention Center to see if she could potentially qualify for the study. After an initial consultation, Hayley was invited back to have a fine needle aspiration to collect a tissue sample. This sample will be the final determination of whether or not Hayley will be accepted into the trial.

Most people don’t know what to expect when it comes to qualifying or participating for a clinical trial. Hayley shares the experience in her own words:

I arrived at the Breast Research Center, and I was a little bit nervous. I was about to have needles put in me! I was checked in right away and taken to my exam room. The staff was all very helpful and friendly. They quickly put my mind at ease. The nurse took my vitals and went over some paperwork with me that thoroughly explained the procedure, the after care, and what I should expect. She also explained a little bit more about the research study, and I was then feeling ready and prepared.

Kandy and Amy came in to give me an initial exam and prepare me for my fine needle aspiration. They made casual conversation that relaxed me and made me feel comfortable. After explaining all of the steps, they turned on some soft music and low lights. I thought I was at the spa for a moment! They continued to engage me in conversation that kept my mind distracted and my nerves calm.

They cleaned the area that they would be working around, and everything was ready. The only discomfort I experienced the entire time was a little pinch when the numbing medication was put in. After I was numb, I felt no pain at all, from start to finish. The procedure only took about 20 minutes, and I just rested and talked with the ladies as they worked.

After they were done, I applied cold packs for a few minutes before they bandaged me up. It was over! The results will take about 4 to 6 weeks, and then I will know if I qualify for the flaxseed trial. I would definitely do it again, and I would recommend it to anyone interested.

I will get to follow up regularly with the clinic and stay on top of my breast health. This is important to me, especially as a person without good health insurance. This is a great opportunity to keep up on my own health and contribute to research!

It only took about four weeks to get my aspiration results back. I was excited to find out that I did qualify for the study! The office set me up with another appointment to come back and finish the final steps to get me enrolled in the study.

I was asked to fast the night before my appointment, and when I arrived, I had a blood draw. As usual, the office staff was very friendly and helpful. I did not have to wait long periods of time, which was important when I had my four year old with me!

I went over the last details with Jessica, the study coordinator. I feel very confident about my role in the study, which is as simple as taking my study medication (with no known side effects) each day, and checking back in with the clinic regularly. As I finished signing my paperwork, I found out that the study pays me too! I had no idea! That made for a wonderful surprise, and now I'm ready to start the study and do my part in Breast Cancer Research!

Are you thinking about participating in a clinical trial? Don't hesitate! It has been a great experience and opportunity to give back! - Hayley Woods

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